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Support Group was a Success!
It was a great turn out... but we had some visitors there that we had to kick out since I had a permit to have the space for the entire day. They weren't too happy. Sorry!
We had Meredith - who has a rare kind of dwarfism called Morquio Syndrome that is thinking of getting an CI. Her only challenge is that she had a spinal fusion which means if you have surgery and get intubated, they can't tilt her neck at all. We were told that Dr. Niparko from JHH has some surgeries as a local... eek! I can't imagine that!
Of course, Carrie showed up just one day post-op. My BEA manager, Beth Anne called her a brave soul. She didn't come alone :) Her mom drove her and brought her down. I think she was in good spirits and well medicated for her pain management.
I was happy with today's outcome. Let's hope that the next one will be even bigger!!! Here are some photos!
We had Meredith - who has a rare kind of dwarfism called Morquio Syndrome that is thinking of getting an CI. Her only challenge is that she had a spinal fusion which means if you have surgery and get intubated, they can't tilt her neck at all. We were told that Dr. Niparko from JHH has some surgeries as a local... eek! I can't imagine that!
Of course, Carrie showed up just one day post-op. My BEA manager, Beth Anne called her a brave soul. She didn't come alone :) Her mom drove her and brought her down. I think she was in good spirits and well medicated for her pain management.
I was happy with today's outcome. Let's hope that the next one will be even bigger!!! Here are some photos!
Tom with AB's Directional Signs
Me with AB Balloons!!!
Carrie (blue shirt) with Me and Meredith (purple shirt)