Showing posts with label Support Group. Show all posts
Showing posts with label Support Group. Show all posts
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The BEA Spring Gathering at the Washington DC Zoo!!!!

Posted by Tina on 11:44 PM in , ,
You heard it right - we went out of our way to hold an event at the DC Zoo... the best part, there is no admission prices... but there is a parking fee if you want to park down there.

We had a great group of people showing up today!  We thought it was going to rain all day... the weather held off til the closing time of the zoo! And boy, we got tons of pictures to show!  If you couldn't make it, you missed a great gathering and we had so much fun meeting new people and becoming friends with them :) We sported some cute new stickers to show off our CI status. :)

Enjoy the photos!!!


Brochures, Bags, Monkeys, and much more!


Sign-In Sheets, more brochures!


Me and my BEA Manager, Katie


Some of the AB's recipients.


Scott's Family eating lunch before the big trek around the zoo!


Tina and Carrie talking while walking




Really Cute Panda.



Scott, Tina and Carrie




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Support Group at the Arbutus Library

Posted by Tina on 6:19 PM in , ,
We used a new location for the Winter BEA support group.  This library is spanking brand new and CLEAN!

We had BethAnne from AB come and talk about the changes with AB.  There are so many new changes... if you don't know... Sonova has acquired AB and they are also patterned with Phonak (the top digital hearing aid company on the market) which will mean that in the future, our CI's will get small!!!!

The two recalls were discussed.. the patients are explanted and re-implanted and doing very well! The root of the source of the recall was a shortage in the electrode.

Since they found the root problem, they are going to change the ways they manufacture the product and the steps towards it and work on getting it back to the market.

Also discussed about AB's new CEO, Gerhard Roehrlein. He has 25 years with Siemens and also a global pioneer in electronics and electrical engineering.  I think this is going to bring some great stuff to AB! Cant wait to see what the future brings us!!!!

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Support Group was a Success!

Posted by Tina on 8:04 PM in , , , , ,
It was a great turn out... but we had some visitors there that we had to kick out since I had a permit to have the space for the entire day. They weren't too happy. Sorry!

We had Meredith - who has a rare kind of dwarfism called Morquio Syndrome that is thinking of getting an CI. Her only challenge is that she had a spinal fusion which means if you have surgery and get intubated, they can't tilt her neck at all.  We were told that Dr. Niparko from JHH has some surgeries as a local... eek!  I can't imagine that!

Of course, Carrie showed up just one day post-op. My BEA manager, Beth Anne called her a brave soul. She didn't come alone :) Her mom drove her and brought her down. I think she was in good spirits and well medicated for her pain management.

I was happy with today's outcome. Let's hope that the next one will be even bigger!!! Here are some photos!



Tom with AB's Directional Signs


Me with AB Balloons!!!


Carrie (blue shirt) with Me and Meredith (purple shirt)


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BEA Picnic

Posted by Tina on 4:30 AM in , , ,
It's early in the AM!  Got so much prep work to do for the BEA's Picnic Gathering!  I got balloons to fill up, directional signs to put up too!

My fiancee is helping me a lot to do this!  We got people coming from Delaware and New Jersey!  And we have a gal that just had surgery yesterday that is coming to the picnic!  I know - already? She said that she really wants to go but I told her to take it easy.  I was able to go to her surgery yesterday since I had a mapping that morning.

Wish me luck! Hopefully it doesn't rain or get too hot.  We have a gazebo, so we should be in the shade all day!!!

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BEA Support Group - Great Turnout!

Posted by Tina on 5:00 PM in , , , ,
It was a great turn out. I think I shocked everyone that I was 4 days post-op.  I told them that I was bilateral as of 4 days ago... not activated but surgically wise.  Most of them were amazed that I was feeling good in a short time. (The trick was - - - the best pain meds you can ask for!)

My balance is back on track as well, I explained to the group that with my first CI surgery, my balance was a bit out of whack. And this bilateral surgery could either make it or break it. Since the surgery, I've noticed a huge improvement in my balance, its better than before.

Hopefully the next support group at the end of the summer will be even bigger!!!

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Baltimore BEA Chapter Support Group

Posted by Tina on 8:56 AM in , , ,
Yes! There is a support group held at the Elkridge Public Library... I know I just had surgery 4 days ago but I feel great!!!  I have friends that will help me with all the lifting (since I can't lift anything more than 5 pounds for a few weeks due to the surgery).

Let's hope for a great turn out. I have Beth Anne and a clinical specialist coming in today to help anyone with any questions they need answered!

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