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Support Group was a Success!

Posted by Tina on 8:04 PM in , , , , ,
It was a great turn out... but we had some visitors there that we had to kick out since I had a permit to have the space for the entire day. They weren't too happy. Sorry!

We had Meredith - who has a rare kind of dwarfism called Morquio Syndrome that is thinking of getting an CI. Her only challenge is that she had a spinal fusion which means if you have surgery and get intubated, they can't tilt her neck at all.  We were told that Dr. Niparko from JHH has some surgeries as a local... eek!  I can't imagine that!

Of course, Carrie showed up just one day post-op. My BEA manager, Beth Anne called her a brave soul. She didn't come alone :) Her mom drove her and brought her down. I think she was in good spirits and well medicated for her pain management.

I was happy with today's outcome. Let's hope that the next one will be even bigger!!! Here are some photos!



Tom with AB's Directional Signs


Me with AB Balloons!!!


Carrie (blue shirt) with Me and Meredith (purple shirt)


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BEA Picnic

Posted by Tina on 4:30 AM in , , ,
It's early in the AM!  Got so much prep work to do for the BEA's Picnic Gathering!  I got balloons to fill up, directional signs to put up too!

My fiancee is helping me a lot to do this!  We got people coming from Delaware and New Jersey!  And we have a gal that just had surgery yesterday that is coming to the picnic!  I know - already? She said that she really wants to go but I told her to take it easy.  I was able to go to her surgery yesterday since I had a mapping that morning.

Wish me luck! Hopefully it doesn't rain or get too hot.  We have a gazebo, so we should be in the shade all day!!!

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